Good days AND BAD!

Well  maybe not bad days.....more like bad moments.  For those of you that have been following my blog you are totally aware that Ryan has Infantile Scoliosis.  For those that have not been around for long.....well now you know.

A condition that usually is associated with teens and adults, scoliosis is a condition where the spine doesn't grow straight, but curves and twists.  Early Treatment is vital for babies and young children!
Left untreated the spine begins to curve so severely that it can crushed the heart and lungs. And at that point surgery is a must.  Thankfully Ryan did benefit from a form of casting and now bracing(which causes our bad moments/days).
Ryan's infantile scoliosis is a rare condition.  In fact, only 1 out of 10,000 children are diagnosed with it.  Although I think there are more out there than that.
So hopefully you have an idea now about Infantile Scoliosis.
***If this is new to you PLEASE read more about it!  AWARENESS is key!!!!  I have links on my blog about Ryan's story, another little boy's story, a PSA done about Infantile Scoliosis as well as a picture of Ryan's spine prior to treatment.  And please feel free to contact me if you should have any questions.***

OK so on to the good days and BAD day/moments...............................

Good days are when he, agrees without saying a single word, to put his brace on.  And goes back to life as usual.

Bad days are when he whines and cries because it is time to put it on and he doesn't understand why God made him this way.

Good days are when he has his brace on and runs and plays without remembering he has it on.(This does not happen very often!)

Bad days are when I put the brace on and ALL playing STOPS! He sits and seems sad.

Good days are when I can get the stupid brace on and I don't have to readjust it to his body and make sure it is on well enough to not make him feel uncomfortable.

Bad days are when he says, "This is so uncomfortable!" 

Bad days are when I put it on and then have to take it right back off because he has an itch and can not scratch it because it is inside the brace!!!  That dang brace!

Bad days are when I read about another child diagnosed with Infantile Scoliosis because an incompetent orthopedic surgeon wanted to "wait and see" instead of treating that young child EARLY for a curved spine.

Good days are when I realize how blessed we are they Ryan has never had a surgery and will "likely" never have one.

At this point we have NO idea for how long Ryan will wear a brace.  He could  have to wear one until he stops growing.  That is a very LONG time folks.  And those bad days will only get worse.  All I know is as he gets older it gets harder.  And all I can do is pray as he gets older that he tries to understand God has a plan for him.  Why God decided that Ryan would have scoliosis and not me....I have no clue.  But I have faith that He has a good plan.
So I try to count my good days and forget the bad. 

And we know that for those who love God all things work together for good,  for those who are called according to his purpose.
Romans 8:28

One more thing........will you do me a favor and share this blog post with someone.  AWARENESS is key for EARLY treatment!   Save an innocent baby from a childhood of surgeries!